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Listing: Support Groups and Peer Mentor Resources for All Conditions

Body

Alcoholics Anonymous

AA - Online 
Online Intergroup of Alcoholics Anonymous
https://aa-intergroup.org/

Aphasia

National Aphasia Association
naa@aphasia.org | no phone
National Aphasia Association
P.O.Box 87, Scarsdale, NY 10583
https://www.aphasia.org/

Northwestern Medicine Mesulam Center for Cognitive Neurology
Monthly support group for family and care partners of people with PPA primary progressive aphasia. Meets online the third Monday of each month from 4:30 to 6:00 p.m. 
Contact Darby Morhardt, PhD, LCSW
d-morhardt@northwestern.edu
312.908.9432 
There is no fee to participate.
http://www.brain.northwestern.edu/care-and-support/ftd-ppa-support.html

Arthritis and Joint Conditions

Lupus Foundation of America 
https://www.lupus.org/resources/find-support-near-you
Northern and Central Illinois - Illinois Chapter
Southern Illinois - Heartland Chapter

Lupus Society of IL - Chicago Chapter and IL
312.542.0002
https://www.lupusil.org/get-involved/support-groups-2/

National Ataxia Foundation

National Ataxia Foundation
763.553.0020
https://www.ataxia.org/support-groups/

Brain Injury

American Brain Tumor Association Support 
800.886.ABTA (2282)
https://www.abta.org/about-brain-tumors/social-emotional-support/

Brain Injury Association of IL List of sites
800.699.6443
https://www.biail.com/support.htm

Brain Injury Association of America-National
800.444.6443
https://www.biausa.org/find-bia

Brain Aneurysm Foundation Support Group
888.272.4602
https://www.bafound.org/recovery/support-groups/

Synapse House
877.932.1120
https://synapsehouse.org/

Burn

Burn Survivor Support - Burn Institute
(858) 541-2277
https://burninstitute.org/burn-survivor-programs/

Phoenix Society 
800.888.2876
http://www.phoenix-society.org/            

Cancer Rehabilitation

American Cancer Society
800.227.2345
https://www.cancer.org/treatment/support-programs-and-services.html

Cancer Care Support Groups
800.813.HOPE (4673)
https://www.cancercare.org/tagged/support_groups

Imerman Angels
866-IMERMAN (463-7626)
https://imermanangels.org/

Gilda's Club
312.464.9900
https://www.gildasclubchicago.org/

Cancer Wellness Center
847.509.9595
https://www.cancerwellness.org/

Surviving Breast Cancer
https://www.survivingbreastcancer.org/ 

ThyCA Thyroid Cancer Support Groups
877.588.7904
http://www.thyca.org/sg/

Cardiac Dysfunction

American Heart Association-National
800.242.8721
https://supportnetwork.heart.org/

American Heart Association-IL 
312.346.4675
https://www.heart.org/en/affiliates/illinois/chicago

Northwestern Medicine-Bluhm Cardiovascular Institute
312.664.3278
https://www.nm.org/conditions-and-care-areas/treatments/ventricular-assist-devices#:

Loyola Medicine-Center for Heart and Valve Medicine 
888.584.7888
https://www.loyolamedicine.org/services/heart-and-vascular/heart-valve-center

University of Chicago Medicine-Transplantation and Circulatory Support
888.824.0200 
773.834.7819
https://www.uchicagomedicine.org/conditions-services/heart-vascular/heart-failure

Cerebral Palsy

Cerebral Palsy Foundation 
212.520.1686
https://www.yourcpf.org/blogs/

UCP Sequin-Chicago
708.863.3803
https://ucpseguin.org/

Chronic Pain

American Chronic Pain Association
800.533.3231
https://www.acpanow.com/#/

National Fibromyalgia & Chronic Pain Association
801.200.3627

Grief

GriefShare
There are thousands of GriefShare groups meeting weekly at locations around the world. There’s probably one near you! The program is designed so that you can join the group at any time. You will be welcomed and encouraged.
Email: info@griefshare.org
800.395.5755 
International: 919.562.2112
https://www.griefshare.org/

Guillain-Barré syndrome

Guillain-Barré syndrome - Facebook Support Group
Facebook support group
https://www.facebook.com/pages/category/Community/Guillian-Barre-Syndrome-Support-Group-118128741585652/

Living with Polyneuropathy CIDP, GBS, & CMT
modsupport@bensfrinds.org

GBS/CIDP Foundation International Support
 866-224-3301 (Call for information on support group and arranging for a peer mentor).
https://www.gbs-cidp.org/support/

Limb Loss & Impairment

Amputee Coalition of America
888.267.5669
https://amputee-coalition.org/service/find-a-support-group/

Central IL Amputees (CIA)
217.663.8064
http://www.disabilityresourceexpo.org/resource/central-illinois-amputee-cia-support-group/

Multiple Sclerosis

NorthShore MS Caregivers Support Group
Meets every 3rd Wednesday of the month at 7:00 PM at NorthShore's Skokie Hospital
Room C (1041A)
9600 Gross Point Road, Skokie, IL 60076
312.331.0466
millerfam2145@gmail.com

National Multiple Sclerosis Society- National
www.nationalmssociety.org/Resources-Support/Find-Support
https://nms2cdn.azureedge.net/cmssite/nationalmssociety/media/msnationalfiles/brochures/msfriends-informational-flyer.pdf
800.344.4867

National MS Society
www.nationalmssociety.org/Chapters/ILD
800.344.4867

Multiple Sclerosis Support Online  MS Social Network - MyMSTeam
https://www.mymsteam.com/

Lung & Pulmonary

American Lung Association Online Support Groups
https://www.lung.org/support-community/online-support-communities

UNOS Support groups by state
https://transplantliving.org/community/support-groups/

The University of Chicago-Lung Transplant Program
Contact: Fran Hammon
773.702.4608

Loyola University Medical Center-Lung Transplant Center
Contact: Susan Long
708.216.5454

Ostomy

United Ostomy Association of America
Supports, empowers and advocates for people who have had or will need an ostomy.
www.ostomy.org/
P.O. Box 525
Kennebunk, ME 04043-0525
800.826.0826

Parkinson's Disease & Neurologic Conditions

American Parkinson Disease Association support
800.223.2732
https://www.apdaparkinson.org/resources-support/

Northwestern Medicine Parkinson's Support Groups - Chicago
downtown and also online support groups
312.503.4397
https://www.nm.org/conditions-and-care-areas/neurosciences/movement-disorders/patient-support-and-information/support-groups/downtown-parkinsons-disease-support-groups

Pediatric & Adolescent Rehabilitation

American Brain Tumor Association-pediatric
800.886.2282
https://www.abta.org/about-brain-tumors/caregiving/pediatric-caregiver-resources-center/

Child Neurology Foundation (parent peer support) 
888.417.3435
https://www.childneurologyfoundation.org/support-for-patients-caregivers/

Childrens Oncology Group Support
https://childrensoncologygroup.org/

Family Resource Center for Children with Disabilities
312.939.3513
https://frcd.org/

United Cerebral Palsy Association-National
800.872.5827
https://ucp.org/

Spinal Cord Injury

Backbones
618.724.5484
https://backbonesonline.com/

Christopher and Dana Reeve Foundation support
800.539.7309
https://www.christopherreeve.org/get-support

Facing Disability: online peer support videos
312.284.2525
https://facingdisability.com/

GUSU2Cure
info@gusu2cure.org
https://www.gusu2cure.org/

United Spinal Association
800.962.9629
https://unitedspinal.org/

Spinal Cord Injury – Gun Violence Survivor Peer Support Group
This is a social/support group for people who have survived a gunshot and are now paralyzed from a spinal cord injury.  
https://unitedspinal.org/new-group-for-gunshot-survivors/
Please request Zoom link at RSA@rochesterspinalassociation.org

Spinal Cord Injury Association-IL
708.671.1808

Stroke Recovery

American Stroke Association - Support Group Finder
800.242.8721 
https://www.stroke.org/en/stroke-support-group-finder

Beyond Stillness - Stories After Stroke
Our mission is to empower stroke survivors to articulate and share their stories of wisdom, purpose, connection, and hope.
https://www.beyondstillness.org/

Life After Stroke radio Podcast 
Support with Christopher Ewing
Available on Apple, Spotify, Google, and iHeart.
http://www.thestrokechannel.tv/radiopodcast.html

RUSH - Stroke Support Group [no web link]
For caregivers and stroke survivors 
Meets on the 2nd Tuesday on ZOOM, 2-3pm CST
Contact: Gail Valadez
312.563.2994  
Gail_Valadez@rush.edu

Stroke Survivors Empowering Each Other (SSEEO)
888.988.8047
https://sseeo.org/

Spina Bifida

Spina Bifida Association
800.621.3141
https://www.spinabifidaassociation.org/

Vestibular Disorders

Vestibular Disorders Association support
800.837.8428
https://vestibular.org/support_groups

You may also be interested in: 

Listing: Support Groups at the Shirley Ryan AbilityLab

Peer Mentor Program at the Shirley Ryan AbilityLab

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This content is for informational purposes only and may not be comprehensive. Information contained does not imply an endorsement from Shirley Ryan AbilityLab, and does not replace the advice of a qualified healthcare professional.  See here  for further details.
© Shirley Ryan AbilityLab (formerly Rehabilitation Institute of Chicago)
Henry B. Betts LIFE Center – (312) 238-5433

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