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Support Groups and Peer Mentor Resources for All Conditions

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Alcoholics Anonymous

AA - Online
Online Intergroup of Alcoholics Anonymous. Offers virtual support meetings for individuals seeking help with alcohol addiction.
No phone number listed

Aphasia

National Aphasia Association
No phone number listed

Northwestern Medicine Mesulam Center for Cognitive Neurology
Monthly online support group for families and caregivers of people with primary progressive aphasia (PPA). Meets third Monday of each month, 4:30–6:00 p.m.
Phone: 312.908.9432 

 

Arthritis and Joint Conditions

Lupus Foundation of America
Provides support and resources for people living with lupus. Includes chapters for Northern, Central, and Southern Illinois.
Phone: 202.349.1155 
 
Lupus Society of IL - Chicago Chapter and IL
Offers support groups and advocacy for lupus patients in Illinois.
Phone: 312.542.0002
 

National Ataxia Foundation

National Ataxia Foundation
Provides support groups and resources for individuals affected by ataxia.
Phone: 763.553.0020

Brain Injury

American Brain Tumor Association Support 
Offers emotional and social support for individuals affected by brain tumors.
Phone: 800.886.ABTA (2282)

Brain Injury Association of IL List of sites
State-wide resource organization offering support and resources for brain injury survivors.
Phone: 800.699.6443

Brain Injury Association of America-National
National organization offering support and resources for brain injury survivors.
Phone: 800.444.6443

Brain Aneurysm Foundation Support Group
Provides support for individuals recovering from brain aneurysms.
Phone: 888.272.4602

Synapse House
Provides community-based support for individuals with brain injury through structured programs.
Phone: 877.932.1120
 

Burn

Burn Survivor Support - Burn Institute
Provides programs and support for burn survivors and their families.
Phone: (858) 541-2277

Phoenix Society 
Offers peer support and recovery resources for burn survivors.
Phone: 800.888.2876
  

Cancer Rehabilitation

American Cancer Society
Provides support programs and services for cancer patients and survivors.
Phone: 800.227.2345

Cancer Care Support Groups
Offers free support groups for people affected by cancer.
Phone: 800.813.HOPE (4673)

Gilda's Club
Support community for people living with cancer and their families.
Phone: 312.464.9900

Imerman Angels
Connects cancer fighters, survivors, and caregivers with peer mentors.
Phone: 866.IMERMAN (463.7626)

Cancer Wellness Center
Provides counseling, education, and wellness services for cancer patients.
Phone: 847.509.9595

Surviving Breast Cancer
Online community offering support and resources for breast cancer survivors.
No phone number listed

ThyCA Thyroid Cancer Support Groups
Provides support groups and resources for thyroid cancer patients.
Phone: 877.588.7904
 

Cardiac Dysfunction

American Heart Association-National
Support network for individuals with heart conditions.
Phone: 800.242.8721

American Heart Association-IL 
Local chapter offering heart health resources and support.
Phone: 312.346.4675

Loyola Medicine-Center for Heart and Valve Medicine 
Provides specialized care and support for heart valve conditions.
Phone: 888.584.7888

Northwestern Medicine-Bluhm Cardiovascular Institute
Offers advanced heart care and support services.
Phone: 312.664.3278

University of Chicago Medicine-Transplantation and Circulatory Support
Provides heart failure and transplant support services.
Phone: 888.824.0200 
Phone: 773.834.7819
 

Cerebral Palsy

Cerebral Palsy Foundation 
Shares stories and resources to support people with cerebral palsy.
Phone: 212.520.1686

UCP Sequin-Chicago
Supports individuals with disabilities including cerebral palsy in the Chicago area.
Phone: 708.863.3803
 

Chronic Pain

American Chronic Pain Association
Provides peer support and education for people living with chronic pain.
Phone: 800.533.3231

National Fibromyalgia & Chronic Pain Association
Supports individuals with fibromyalgia and chronic pain through advocacy and education.
Phone: 801.200.3627

Grief

GriefShare
There are thousands of GriefShare groups meeting weekly at locations around the world. There’s probably one near you! The program is designed so that you can join the group at any time. You will be welcomed and encouraged.
Phone: 800.395.5755 
 

Guillain-Barré syndrome

Guillain-Barré syndrome - Facebook Support Group
Facebook support group
No phone number listed

Living with Polyneuropathy CIDP, GBS, & CMT
Support resource for individuals living with polyneuropathy and related conditions.
No phone number listed

GBS/CIDP Foundation International Support
Provides peer mentoring and support groups for individuals with GBS, CIDP, and related conditions.
Phone: 866-224-3301 
 

Limb Loss & Impairment

Amputee Coalition of America
Helps people with limb loss find support groups and resources.
Phone: 888.267.5669

Central IL Amputees (CIA)
Local support group for amputees in Central Illinois.
Phone: 217.663.8064
 

Multiple Sclerosis

NorthShore MS Caregivers Support Group
Meets every 3rd Wednesday of the month at 7:00 PM at NorthShore's Skokie Hospital
Phone: 312.331.0466
No link provided

National Multiple Sclerosis Society- National
Offers national support services and peer connections for MS patients.
Phone: 800.344.4867

Multiple Sclerosis Support Online  MS Social Network - MyMSTeam
Social network for people living with MS to connect and share experiences.
No phone number listed

Lung & Pulmonary

American Lung Association Online Support Groups
Provides online communities for people with lung disease to connect and share experiences.
No phone number listed

Loyola University Medical Center-Lung Transplant Center
Offers support and care for individuals undergoing lung transplant.
Phone: 708.216.5454
No link provided

UNOS Support Groups by State
Lists transplant-related support groups organized by state.
No Phone number listed

The University of Chicago-Lung Transplant Program
Provides transplant support and resources for lung disease patients.
Phone: 773.702.4608

 

Ostomy

United Ostomy Association of America
Supports, empowers and advocates for people who have had or will need an ostomy.
Phone: 800.826.0826

Parkinson's Disease & Neurologic Conditions

American Parkinson Disease Association Support
Provides resources and support groups for people with Parkinson’s disease.
Phone: 800.223.2732

Northwestern Medicine Parkinson's Support Groups - Chicago
Offers downtown and also online support groups
Phone: 312.503.4397
 

Pediatric & Adolescent Rehabilitation

American Brain Tumor Association-Pediatric
Provides caregiver resources for families of children with brain tumors.
Phone: 800.886.2282

Child Neurology Foundation
Offers peer support for parents of children with neurological conditions.
Phone: 888.417.3435

Childrens Oncology Group Support
Provides support and resources for children with cancer and their families.
No phone number listed

Family Resource Center for Children with Disabilities
Supports families of children with disabilities through advocacy and education.
Phone: 312.939.3513

United Cerebral Palsy Association-National
Provides services and support for individuals with cerebral palsy.
Phone: 800.872.5827
 

Spinal Cord Injury

Backbones
Connects people with spinal cord injuries through peer support and events.
Phone: 618.724.5484

Christopher and Dana Reeve Foundation support
Provides support and resources for individuals living with paralysis.
Phone: 800.539.7309

Facing Disability: Online Peer Support Videos
Offers video interviews and peer support for families facing spinal cord injury.
Phone: 312.284.2525

GUSU2Cure
Supports spinal cord injury research and community engagement.

United Spinal Association
United Spinal Association empowers and advocates for people with spinal cord injuries/disorders and all wheelchair users to achieve their highest quality of life.
Phone: 800.962.9629

Spinal Cord Injury – Gun Violence Survivor Peer Support Group
This is a social/support group for people who have survived a gunshot and are now paralyzed from a spinal cord injury.  
Please request Zoom link at RSA@rochesterspinalassociation.org

Spinal Cord Injury Association-IL
Provides support and advocacy for individuals with spinal cord injuries in Illinois.
Phone: 708.671.1808

Stroke Recovery

American Stroke Association - Support Group Finder
Helps locate stroke support groups by region.
Phone: 800.242.8721

Beyond Stillness - Stories After Stroke
Our mission is to empower stroke survivors to articulate and share their stories of wisdom, purpose, connection, and hope.
No phone number listed

Life After Stroke Podcast 
Hosted by Christopher Ewing, this podcast shares stroke recovery stories.
Available on Apple, Spotify, Google, and iHeart.

RUSH - Stroke Support Group 
For caregivers and stroke survivors 
Meets on the 2nd Tuesday on ZOOM, 2-3pm CST
Phone: 312.563.2994  
No website listed

Stroke Survivors Empowering Each Other (SSEEO)
Provides peer support and empowerment for stroke survivors.
Phone: 888.988.8047

Spina Bifida

Spina Bifida Association
Offers support, education, and advocacy for individuals with spina bifida.
Phone: 800.621.3141

Vestibular Disorders

Vestibular Disorders Association support
Provides support groups and resources for people with balance and dizziness disorders.
Phone: 800.837.8428
 

You may also be interested in: 

Listing: Support Groups at the Shirley Ryan AbilityLab
Comprehensive listing of support groups offered through Shirley Ryan AbilityLab.

Peer Mentor Program at the Shirley Ryan AbilityLab
Connects patients with trained peer mentors for support.

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This content is for informational purposes only and may not be comprehensive. Information contained does not imply an endorsement from Shirley Ryan AbilityLab, and does not replace the advice of a qualified healthcare professional.  See here  for further details.
© Shirley Ryan AbilityLab (formerly Rehabilitation Institute of Chicago)
Henry B. Betts LIFE Center – (312) 238-5433

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