Learn More
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For information on Spinal Cord Injuries research within Shirley Ryan AbilityLab, please visit the Shirley Ryan Abilitylab Spinal Cord Innovation Center
Christopher and Dana Reeve Foundation
Dedicated to finding treatments and cures for paralysis caused by spinal cord injury and other neurological disorders. It also works to improve the quality of life for people living with disabilities.
1-800-225-0292
https://www.christopherreeve.org/
Model Systems Knowledge Translation Center MSKTC - Living with SCI
The MSKTC is a national center that helps facilitate the knowledge translation process to make research meaningful to those with Spinal Cord Injury, Traumatic Brain Injury and Burn Injury. 202-403-5600
https://msktc.org/
National Paralysis Resource Center
Co-founded by Christopher and Dana Reeve, the National Paralysis Resource Center is focused on the day-to-day challenges of living an independent and fulfilling life.
https://www.christopherreeve.org/todays-care/paralysis-help-overview/about-the-paralysis-resource-center/
1-800-225-0292
Patient education and information handouts about spinal cord injury. | Spinal Cord Essentials
Spinal Cord Essentials has easy to understand patient education information sheets. https://www.uhn.ca/TorontoRehab/Spinal-Cord-Rehab/Spinal-Cord-Essentials
Support & Peers
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BACKBONES – Connecting People with Spinal Cord Injury (backbonesonline.com)
BACKBONES exists to help people with spinal cord injury or disease (SCI/D) and their families connect with their communities
618-724-5484
https://backbonesonline.com/
CaringBridge
The CaringBridge is a website that allows people to get updates and provide support to persons with a condition. 651-789-2300
https://www.caringbridge.org/
FacingDisability.com
FacingDisability.com connects families who suddenly have to deal with a spinal cord injury to people like them who have already been there.
737 N. Michigan Ave.
Suite 1560
Chicago, IL 60611
Phone: 312-284-2525
Email: info@facingdisability.com
https://facingdisability.com/
GUSU2Cure - GUSU2CURE Paralysis
Get Up Stand Up To Cure Paralysis (GUSU) is a nonprofit organization in Minnesota working to unite, educate and support those dealing with Spinal Cord Injuries and to advocate for research and the restoration of function.
info@gusu2cure.org
https://www.gusu2cure.org/
Support Groups - United Spinal Association
1-800-962-9629
United Spinal Association's Peer Support Groups set the highest standards in assisting people living with spinal cord injuries and all wheelchair users. Our network provides peer-to-peer support for individuals, friends and family members.
https://unitedspinal.org/peer-support-groups/
Spinal Cord Injury – Gun Violence Survivor Peer Support Group
This is a social/support group for people who have survived a gunshot and are now paralyzed from a spinal cord injury.
https://unitedspinal.org/new-group-for-gunshot-survivors/
Please request Zoom link at RSA@rochesterspinalassociation.org
Financial Assistance
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Bryon Riesch Paralysis Foundation (brpf.org)
Typical charitable grants to individuals have provided home and transportation accessibility assistance to those living with mobility disabilities with preference purpose going to those living with spinal cord injury.
(262) 547-2083
https://brpf.org/
High Fives Non-Profit Foundation
The Empowerment Fund provides resources and inspiration to those who suffer a life-altering injury such as spinal cord injuries, traumatic brain injuries, amputation or other mobility-limiting injuries that occurred in an athlete’s lifetime.
(530) 562 4270
https://highfivesfoundation.org/grant-application/
HelpHopeLive
800-642-8399
Long term care for a person with a disability can become expensive. Non-medical expenses such as caregiving and housing are often not covered by insurance.
https://helphopelive.org/
Kelly Brush Foundation
The purpose of the individual grant program is to increase participation in adaptive sports and recreation activities and improve the quality of life for individuals living with SCI.
802-846-5298
https://kellybrushfoundation.org/
INJURED IN NEED OF HELP (tightenthedragfoundation.org)
Improving the quality of life through sports, funding, motivation and events.
813-743-2827
https://www.tightenthedragfoundation.org/about-us
Travis Roy Foundation | Spinal Cord Injury Grants & Research
Enhancing the life of individuals with spinal cord injuries and their families by providing adaptive sports equipment and assistive technology.
info@travisroyfoundation.org
No phone provided
https://www.travisroyfoundation.org/
Triumph Foundation (triumph-foundation.org)
Equipment, supplies, and services for everyday living such as wheelchairs and adaptive equipment.
(661) 803-3700
https://triumph-foundation.org/
Walking With Anthony
Fundraising and scholarships to assist with the financial strains that come with a new and ongoing injury.
(213) 986-6486
https://www.walkingwithanthony.org/
United Spinal Association
United Spinal Association sets the highest standards in assisting people living with spinal cord injuries and all wheelchair users. Our network provides peer-to-peer support for individuals, friends and family members.
https://unitedspinal.org
United Spinal Association: Pediatric Spinal Cord Injury & Disease
Pediatric SCI resources, facilities, publications and special concerns.
https://askus-resource-center.unitedspinal.org/index.php?pg=kb.book&id=23
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