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Kyle's Journey with Locked-in Syndrome
At 30 years old, Kyle experienced a rare brainstem stroke causing a condition called locked-in syndrome. Although his cognitive abilities were completely intact, he was unable to move or talk.
Patient Story
Dhrumil Shah, MPH
Research Assistant
Etem Curuk, PhD
Post Doctoral Fellow
Selin Sipahi
Research Assistant

Volitional Questionnaire
Area of Assessment
Self-efficacyBehavior
Life Participation
Insight
Time
minutesAssessment Type
Observercost
$40.00Rehabilitation Measure

Laurie Scherrer: Helping People with Dementia Live Fulfilling Lives
Laurie Scherrer had two forms of dementia, specifically early-onset Alzheimer’s disease and frontotemporal lobe degeneration. Eventually, Laurie became an active member of DAA and now serves on its Board of Directors.
In the News

Romberg Test
Area of Assessment
Balance – VestibularBalance – Non-vestibular
Time
minutesAssessment Type
Performance Measurecost
FreeRehabilitation Measure

(Hauser) Ambulation Index
Time
minutesAssessment Type
Performance Measurecost
FreeRehabilitation Measure

Gait Speed
Area of Assessment
Balance – Non-vestibularBalance – Vestibular
Coordination
Functional Mobility
Time
minutes , <5 minutescost
FreeRehabilitation Measure

Stress Appraisal Measure
Area of Assessment
Stress & CopingTime
minutes , 10-15 minutesAssessment Type
Patient Reported Outcomescost
FreeRehabilitation Measure

Keele Assessment of Participation
Area of Assessment
Activities of Daily LivingCognition
Functional Mobility
Life Participation
Quality of Life
Social Relationships
Time
minutes , Approximately 2-4 MinutesAssessment Type
Patient Reported Outcomescost
FreeRehabilitation Measure