National PD Resources
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Many of the websites include phone numbers and local chapters, especially in the Chicago area. You can find places to join support meetings, learn about clinical trials, or get involved in community programs. These resources are meant to make life easier for people living with Parkinson’s and those who care about them.
Helps people with Parkinson’s by offering support groups, education, and programs to improve daily life. Also available in Spanish on website
Phone: 800.223.2732
A website from the National Institutes of Health that helps people find information about medical studies happening around the world. With this tool, one may search for trials by disease, location, or treatment to learn what research is being done.
No phone number listed
Davis Phinney Foundation for Parkinson's
Provides tips, tools, and stories to help people with Parkinson’s live well every day.
Phone: 866.358.0285
Fox Trial Finder
A resource provided by the Michael J. Fox Foundation for individuals interested in participating in PD research, search this resource to find eligible studies for you based on location and health history.
Phone: 212.509.0995
Shares easy-to-understand information, support, and resources for people living with Lewy body dementia and their families.
Phone: 800.539.9767
The Michael J. Fox Foundation for Parkinson’s Research supports research to find a cure for Parkinson’s disease and offers easy-to-understand tools, guides, and updates to help people live better with the condition.
Phone: 800.708.7644
This resource from National Institute of Neurological Disorders and Stroke (NINDS) explains what Parkinson’s disease is, what causes it, and how it affects the brain and body. It also shares information about treatments, research, and ways to manage symptoms.
Offers free online classes, support groups, and easy-to-understand tools to help people with Parkinson’s and other movement disorders live better.
Provides trusted information, free resources, and support to help people with Parkinson’s disease live better. It also offers a helpline, educational materials, and ways to connect with others.
Phone: 800.473.4636
Provides care, education, and research for people with Parkinson’s disease. It offers support services and works to improve treatment options for patients and families.
Phone: 650.770.0201
Dedicated to improving quality of life for individuals and families affected by Parkinson’s disease.
Phone: 877.775.4111
Chicagoland PD Resources
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American Parkinson Disease Association Midwest Chapter
Provides local support, education, and wellness programs for people with Parkinson’s disease and their families in the Midwest.
Phone: 630.933.4392
Chicago Movement Coalition
The Chicago Movement Coalition (CMC) is an alliance of community and academic partners that was established in 2019 to be a resource and advocate for members of the Chicagoland community who are underrepresented in the area of Parkinson’s disease care.
Phone: 312.503.0755
Hubbard Street Parkinson's Project
Hubbard Street Dance Chicago offers the oldest Parkinson's dance program in the Midwest. The program uses contemporary dance techniques to slow disease progression and build community.
Phone: 312.850.9744
Lake Forest Health & Fitness Center – Northwestern Medicine
Offers Parkinson’s programming for adults and caregivers, including low to moderate-intensity exercise.
Phone: 847.535.7060
Northwestern University Parkinson’s Disease and Movement Disorders Center
Provides expert care, education, and research for people with Parkinson’s and other movement disorders. It also offers support groups, therapy, and ways to help patients live better.
Phone: 312.503.4397
Parkinson’s Disease Support Group – Loyola Medicine
Loyola Medicine offers a free support group for patients and families. Meetings are held the first Monday of each month, except holidays.
Phone: 888.584.7888
Smartphone & Computer Strategies for PD
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The Shirley Ryan AbilityLab KTEAM lab developed two new education hand-outs for adapting a smart phone for people who experience tremors.
There are various options to make using your smartphone easier when you have tremors or stiffness due to Parkinson’s Disease. Making some small adjustments in touch accommodations may result in your feeling much more confident in your ability to control your phone.
See below downloads for full instructions and education on how to modify your smartphone or computer for easier use:
