Stroke and Epilepsy Resources
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American Stroke Association
This site offers information for the public and professionals about stroke recovery, healthy living, and support groups.
Phone: 888.478.7653
Centers for Disease Control (CDC) Stroke Information
The CDC provides facts about stroke prevention, treatment, and public health programs.
Phone: 800.232.4636
Epilepsy Foundation
This group connects people with epilepsy to care, support, and education.
Phone: 800.332.1000
Epilepsy Foundation of Greater Chicago
Serving 43 counties in Illinois, this group offers counseling and education for people with epilepsy.
Phone: 312.939.8622 or 1.800.273.6027
National Institute of Neurological Disorders and Stroke (NINDS)
NINDS runs a campaign to teach people how to spot stroke signs and act fast.
Phone: 800.352.9424
Tedy's Team
Tedy’s Team is a nonprofit organization dedicated to raising awareness about stroke and heart disease, supporting survivors through their recovery journeys, and promoting education and research. Founded by former NFL player Tedy Bruschi after surviving a stroke, the team engages in endurance events like marathons to fundraise and inspire comebacks for those affected by cardiovascular conditions.
Phone: 508.492.5367
United Stroke Alliance
Offers stroke education and recovery programs like Stroke Camp and BE-FASTER.
Phone: 309.688.5450
Pediatric Stroke Resources
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Children’s Hemiplegia and Stroke Association (CHASA)
CHASA is a 22 year old grassroots non-profit organization dedicated to improving the quality of life for children, teens and adults who developed hemiplegia during childhood. .
No phone number listed
Heart and Stroke Family Guide to Pediatric Stroke
This guide is designed to provide basic information about stroke and stroke care to families of children who have had a stroke.
International Alliance for Pediatric Stroke (IAPS) Pediatric Stroke Family Tool Kit
The IAPS Pediatric Stroke Family Tool Kit is intended to give families guidance on how to navigate this journey after their child has sustained a stroke.
Stroke Support Groups
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Life After Stroke Podcast Support with Christopher Ewing
http://www.thestrokechannel.tv/radiopodcast.html
Available on Apple, Spotify, Google, and iHeart
Stroke Family Caregivers
The American Stroke Association has a list of support for families
Phone: 888.478.7653
Stroke Books of Interest
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Caplans Stroke: A Clinical Approach
Written by renowned stroke expert Louis R. Caplan, this comprehensive guide offers a pragmatic and patient-centered approach to diagnosing, treating, and rehabilitating stroke in both adults and children. It blends evidence-based medicine with clinical experience, using case studies and detailed imaging to support practical decision-making.
Healing the Broken Brain
This accessible guide for stroke survivors and their families explains the latest treatments and recovery strategies in plain language. It includes insights from top neurologists and real-life stories to help readers understand and navigate post-stroke healing.
Identity Theft: Rediscovering Ourselves After Stroke
Debra Meyerson’s deeply personal memoir explores the emotional journey of rebuilding identity after a stroke. Drawing on her own experience and interviews with other survivors, the book offers hope and practical advice for navigating life after trauma.
My Stroke of Insight
Neuroscientist Jill Bolte Taylor recounts her own stroke and recovery, offering a unique perspective on brain function and healing. Her story blends science and spirituality, emphasizing the power of the brain to adapt and recover.
Navigating the Complexities of Stroke
This book provides a thorough overview of stroke types, treatments, and recovery pathways. It’s designed to help patients and caregivers understand the multifaceted nature of stroke and make informed decisions throughout the rehabilitation process.
Pediatric Stroke Rehabilitation
An interdisciplinary resource for clinicians and students, this book outlines evidence-based practices for treating childhood stroke. It emphasizes collaborative care and includes strategies for improving mobility, speech, and independence in young patients.
Stronger After Stroke: Your Roadmap to Recovery
This practical guide empowers stroke survivors to take charge of their recovery through goal-setting, therapy, and lifestyle changes. It offers step-by-step advice and motivational insights to support long-term rehabilitation.
The Aphasia Handbook
Designed for individuals with aphasia and their families, this handbook explains the condition in clear, supportive language. It includes communication tips, therapy options, and resources to help users regain language skills and confidence.
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Listing: Stroke Camps (Adults)
This content is for informational purposes only and may not be comprehensive. Information contained does not imply an endorsement from Shirley Ryan AbilityLab, and does not replace the advice of a qualified healthcare professional. See here for further details.
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