Listing: Organ Transplant Resources


Media Type

Online Resource

Reviewed Date

May 11, 2023


People may receive a transplant of one or more organs, and recovery post transplant can be a journey. This is a listing  of some of the resources available to persons and their families post transplant.


American Transplant Foundation (ATF)
The ATF provides education, emotional support through mentoring, and offers financial assistance.
Their mission is to save lives by reducing the growing list of women, men, and children who are waiting for a transplant by maximizing living organ donation, which is the most effective way to fulfill our mission. no phone.

American Society of Transplantation
The American Society of Transplantation (AST) provides professional and patient information on transplantation and public policy. Resources on the website pertain to living life after a transplant, organ donation, and links to other key resources.

The Heart Brothers Foundation
The Heart Brothers Foundation is dedicated to helping patients with heart failure and their families navigate the financial issues related to cost for heart failure, LVADs and Heart Transplantation.

Long term care for a person with a disability can become expensive. Non-medical expenses such as caregiving and housing are often not covered by insurance. HelpHOPELive teaches patients and families how to set up a fundraising drive to support these out of pocket costs. This nonprofit organization serves as an intermediary for managing donations and supplying documentation required for tax purposes.

National Kidney Foundation (NKF)
Fueled by passion and urgency, National Kidney Foundation is a lifeline for all people affected by kidney disease. As pioneers of scientific research and innovation, NKF focuses on the whole patient through the lens of kidney health.

National Foundation for Transplants (NFT)
The NFT provides advocacy and linkages to fundraising consultants.

Organ Procurement and Transplantation Network (OPTN)
The Organ Procurement and Transplantation Network (OPTN) is a unique public-private partnership that links all professionals involved in the U.S. donation and transplantation system. Also crucial to the system are individuals who sign organ donor cards, people who comment on policy proposals and countless volunteers who support donation and transplantation, among many others.

United Networking Organ Sharing (UNOS)
UNOS provides information on support groups and tips for life pre and post-transplant.


This content is for informational purposes only and may not be comprehensive. Information contained does not imply an endorsement from Shirley Ryan AbilityLab, and does not replace the advice of a qualified healthcare professional.  See here  for further details.
© Shirley Ryan AbilityLab (formerly Rehabilitation Institute of Chicago)
Henry B. Betts LIFE Center – (312) 238-5433

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