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The URN aims to develop and validate a measure of unmet resource needs of the caregivers of survivors of stroke, and to describe the caregivers’ unmet needs during 1 year.
13
5 minutes
Adult
18 - 64
yearsElderly Adult
65 +
yearsInitially reviewed by Yen-Yen S. Gee, MMus, and the Rehabilitation Measures Team in December 2013.
Stroke
(King et al., 2013)
It would be worthwhile to identify the relationship between depression and unmet needs
Modest sample size with a ratio of 12:1, participants:items; a larger sample size, along with a confirmatory factor analysis and examination of predictive validity would be useful
Temporal stability should be assessed with no more than 2 weeks between assessments to add support for scale reliability
Inclusion of an item on information needs related to stroke symptoms and prevention
Allow caregivers to add unmet needs, which could provide important information
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Stroke
(King et al., 2013; caregiver n = 166, survive n = 153-166; stroke survivors were enrolled in a larger invention study to improve stroke caregiver function; inclusion criteria for stroke survivors: (1) planned discharge of survivor to home; (2) primary caregiver (CG) living with the survivor; (3) CG not currently in a support group or therapy; (4) access to a telephone and sufficient hearing to use a phone (5) survivor and CG aged 21 years or older; (6) CG depression screening score over 9 on the Center for Epidemiologic Studies-Depression(CES-D); a primary CG was defined as one who supervised, assisted with, or managed care)
Caregiver
Survivor
Range
Mean (SD)
n (%)
Range
Mean (SD)
n (%)
Gender (female)
N/A
N/A
134 (80.7)
N/A
N/A
64 (39.2)
Race (white)
N/A
N/A
116 (69.9)
N/A
N/A
129 (78.2)
Relation (spouse)
N/A
N/A
111 (66.9)
N/A
N/A
N/A
Employment (full/part time)
N/A
N/A
81 (48.8)
N/A
N/A
81 (49.4)
Education (greater than equal to HS)
N/A
N/A
154 (92.7)
N/A
N/A
138 (84.7)
Aphasia (yes)
N/A
N/A
N/A
N/A
N/A
69 (45.1)
First stroke (yes)
N/A
N/A
N/A
N/A
N/A
130 (78.3)
Age
21-84
55.34 (13.38)
N/A
22-93
61.49 (15.35)
N/A
Survivor function
N/A
18-126
96.66 (25.64)
N/A
Stroke
(King et al., 2013)
Unmet Resource Needs Scale: Scores and Internal Consistency Values During 1 Year (n = 123)
Data Collection
Total Scale
Alpha
General
Alpha
Technology
Alpha
Times
Mean (SD)
Mean (SD)
Mean (SD)
Time 1 (predischarge)
30.28 (7.02)
0.83
23.02 (5.71)
0.83
7.26 (2.30)
0.58
Time 2 (3 months)
27.57 (7.08)
0.86
20.74 (5.66)
0.84
6.74 (2.36)
0.70
Time 3 (6 months)
27.46 (7.55)
0.87
20.83 (5.85)
0.87
6.64 (2.61)
0.81
Time 4 (12 months)
26.46 (6.77)
0.85
20.05 (5.36)
0.84
6.21 (2.49)
0.86
Stroke
(King et al., 2013)
Spearman Correlations Between Time 3 Unmet Resource Needs and Time 3 Outcomes and Coping Process Variables (n = 154)
Measures
1
2
3
4
5
6
7
Unmet resource needs
-
Resource use
-0.11
-
Threat appraisal
0.34
0.16
-
CES-D
0.37
0.18
0.62
-
Preparedness for caregiving
-0.46
-0.02
-0.47
-0.42
-
Functional independence measure
-0.16
-0.04
-0.15
-0.29
0.14
-
Positive problem solving
-0.34
-0.03
-0.38
-0.38
0.35
0.15
-
Stroke
(King et al., 2013)
Smith, A. W., Parsons, H. M., Kent, E. E., Bellizzi, K., Zebrack, B. J., Keel, G., … AYA HOPE Study Collaborative Group. (2013). Unmet Support Service Needs and Health-Related Quality of Life among Adolescents and Young Adults with Cancer: The AYA HOPE Study. Frontiers in Oncology, 3, 75. https://doi.org/10.3389/fonc.2013.00075
We have reviewed more than 500 instruments for use with a number of diagnoses including stroke, spinal cord injury and traumatic brain injury among several others.