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  1. Rehabilitation Measures Database
  2. PROMIS – Ability to Participate in Social Roles and Activities

PROMIS – Ability to Participate in Social Roles and Activities

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Purpose

Originally created by the National Institute of Health (NIH), Patient-Reported Outcomes Measurement Information System (PROMIS) is an expansive system of person-centered measures that evaluates and monitors functions, symptoms, behaviors, and feelings in a number of different domains. There are currently 122 different assessment domains organized into physical, mental, social and global health groups. There are separate assessments for adult and pediatric populations. Although the assessments are broadly domain-focused, a disease-customized measurement can be created by choosing the PROMIS measures most relevant to a specific disease. It can be used with the general population and in individuals with chronic conditions.

Link to Instrument

Instrument Details

Area of Assessment

Communication
Life Participation
Quality of Life
Occupational Performance
Social Relationships

Assessment Type

Patient Reported Outcomes

Cost

Free

Actual Cost

$0.00

Cost Description

If using Computer Adaptive testing (CAT), NIH toolbox is $499.99

Populations

Rheumatic Disease

Key Descriptions

  • Over 300 measures from 122 different domains
  • Usually 4-12 items for each section domain depending on which type of test is being performed (Short Form, CAT, or Profile)
  • Minimum and maximum scores depends on the form being used
  • Scoring: Item-levels are scored numerically for an individual's response to each question. PROMIS recommends the best way to find the total raw score is using the free HealthMeasures Scoring Service (https://www.assessmentcenter.net/ac_scoringservice) or a tool that can automatically calculate scores. Scores can also be added up by hand to find the total raw score.

    Then the raw score is converted to a T-score using the table in the Appendix of the link below. This standardizes the score with a mean of 50 and standard deviation of 10. Being above or below the standard deviation could be desirable or undesirable based
    on the domain being measured.
  • Higher scores means more of the concept being measured. Example = more fatigue.
  • Link to PROMIS Scoring Manuals -
    http://www.healthmeasures.net/promis-scoring-manuals

Number of Items

35 full version

4, 6 and 8 item short form versions

Equipment Required

  • Paper assessment or app with CAT

Time to Administer

5-20 minutes

Required Training

No Training

Age Ranges

Adult

18 - 64

years

Elderly Adult

+

years

Instrument Reviewers

Holly O’Hearn, SPT

Jensyn Bradley SPT, ATC, LAT

Chi-Lun Chiao, SPT

Holt McPherson, SPT

Kenna Peters, SPT

Corinne Woodbine, SPT

Duke University, School of Medicine, Division of Physical Therapy.

ICF Domain

Activity
Participation

Measurement Domain

Participation & Activities

Considerations

  • PROMIS measures can be used in the general population and with adult populations with a chronic condition(s)
  • PROMIS measures have a larger range of measurement than most conventional measures, decreasing floor and ceiling effects as a result
  • PROMIS measures have fewer items than conventional measures, thereby decreasing respondent burden. When used as computer adaptive tests, PROMIS measures usually require 4-6 items for precise measurement of health-related constructs
  • Translations: The assessments are available via PDF in Spanish and can be obtained in other languages by contacting translations@Healthmeasures.net

Non-Specific Patient Population

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Normative Data

Kidney Transplant Recipients: (Tang, et. al., 2019, n=77, 58% male, age=50.6 (17.0) years, adults who received a kidney transplant >30 pre-enrollment )

Distribution of PROMIS scores: Ability to participate in social roles and activities

 

n

Mean

SD

Median

25%

75%

Min

Max

 PROMIS-29

168

52.97

9.26

51.6

44.8

64.1

29.0

64.1

 PROMIS-57

167

52.46

9.73

52.7

44.0

60.2

25.9

65.4

Test/Retest Reliability

Kidney Transplant Recipients: (Tang, et. al., 2019)

  • Excellent for PROMIS-29(n=168) ICC=0.70
  • Excellent for PROMIS-57(n=167) ICC=0.76

Internal Consistency

Kidney Transplant Recipients: (Tang et al, 2019)

  • Excellent for PROMIS-29(n=168) α=0.95
  • Excellent for PROMIS-57(n=167) α = 0.97

Construct Validity

Kidney Transplant Recipients: (Tang et al, 2019)

  • PROMIS-57 section on sleep disturbance showed strong correlation with corresponding legacy instrument (r= − 0.700 (− 0.774 to − 0.606))

Floor/Ceiling Effects

Kidney Transplant Recipients: (Tang, et. al., 2019)

PROMIS-57

  • Floor: 1%
  • Ceiling: 23%

PROMIS-29

  • Floor = 1%
  • Ceiling = 33%

Rheumatic Disease

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Construct Validity

Systemic Lupus Erythematosus: (Katsuri, et. al., 2018, n=204, 92.6% female, age = 40.0 (13.2), recruited from outpatient clinic)

 

Convergent and discriminant validity of PROMIS10. Values are Spearman correlations.

Outcome Measures

PROMIS Global Physical Health, n = 199

PROMIS Global Mental Health, n = 187

  PROMIS ability to participate in social roles CAT

0.74

0.65

Bibliography

Kasturi, S., Szymonifka, J., Burket, J. C., Berman, J. R., Kirou, K. A., Levine, A. B., Sammaritano, L.R., Mandl, L.A. (2018). Feasibility, Validity, and Reliability of the 10-item Patient Reported Outcomes Measurement Information System Global Health Short Form in Outpatients with Systemic Lupus Erythematosus. The Journal of Rheumatology, 45(3), 397 404. doi:10.3899/jrheum.170590

Tang, E., Ekundayo, O., Peipert, J. D., Edwards, N., Bansal, A., Richardson, C., Bartlett, S.J., Howell, D., Li, M., Cella, D., Novak, M., Mucsi, I. (2019). Validation of the Patient-Reported Outcomes Measurement Information System (PROMIS)-57 and -29 item short forms among kidney transplant recipients. Quality of Life Research, 28(3), 815-827. doi:10.1007/s11136 018-2058-2

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