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Listing: Spinal Cord Injury Resources - SCI

condition

Media Type

Online Resource

Reviewed Date

Jun 24, 2021

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Christopher and Dana Reeve Foundation
Dedicated to finding treatments and cures for paralysis caused by spinal cord injury and other neurological disorders. It also works to improve the quality of life for people living with disabilities. 1-800-225-0292  Paralysis Resource Guide

Model Systems Knowledge Translation Center MSKTC - Living with SCI
The MSKTC is a national center that helps facilitate the knowledge translation process to make research meaningful to those with Spinal Cord Injury, Traumatic Brain Injury and Burn Injury. 202-403-5600

Spinal Cord Society – Research for Cure
International Organization for Cure Research & Treatment
of Spinal Cord Injury and Related Neural Problem

 

Support & Peers

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CaringBridge
The CaringBridge is a website that allows people to get updates and provide support to persons with a condition. 651-789-2300

BACKBONES – Connecting People with Spinal Cord Injury (backbonesonline.com)
618-724-5484 

CareCure Home - CareCure Forums
CareCure is an online support community that organizes spinal cord injury related forums with input from a large community of contributers.
www.carecure.net

Coping with Spinal Cord Injury | Video and Resources | Facing Disability
312-284-2525

GUSU2Cure - GUSU2CURE Paralysis
info@gusu2cure.org

SCI PILOT 
SCI peer information library on technology: an information resource describing the assistive technology experiences of individual with quadriplegia.

SCI Guide (bu.edu)
Trusted peer reviewed info: the SCI community drives the most used and best resources for people living with spinal cord injury.

Support Groups - United Spinal Association
1-800-962-9629

 

Financial Assistance

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Blood Brothers Foundation 
501(c)3 non-profit organization that provides financial support for vehicle modifications for individuals living with spinal cord injuries. 970-241-4656 

Bryon Riesch Paralysis Foundation (brpf.org)
Typical charitable grants to individuals have provided home and transportation accessibility assistance to those living with mobility disabilities with preference purpose going to those living with spinal cord injury.
(262) 547-2083

The Dream2Walk Foundation – Together We Can Make A Difference
Awards scholarships to Spinal Cord Injury Patients in need of financial assistance at approved recovery based therapy facilities. (214) 417-8466  

High Fives Non-Profit Foundation
The Empowerment Fund provides resources and inspiration to those who suffer a life-altering injury such as spinal cord injuries, traumatic brain injuries, amputation or other mobility-limiting injuries that occurred in an athlete’s lifetime. (530) 562 4270

Kelly Brush Foundation
The purpose of the individual grant program is to increase participation in adaptive sports and recreation activities and improve the quality of life for individuals living with SCI. 802-846-5298

Travis Roy Foundation | Spinal Cord Injury Grants & Research
Enhancing the life of individuals with spinal cord injuries and their families by providing adaptive sports equipment and assistive technology. Examples of eligible items include upgrade and maintenance of wheelchairs, vehicle modifications (i.e., hand controls or lifts), small home modifications including ramp and lift installation, computers, and other adaptive equipment. info@travisroyfoundation.org No phone provided

Triumph Foundation (triumph-foundation.org)
Equipment, supplies, and services for everyday living such as wheelchairs and adaptive equipment. (661) 803-3700

INJURED IN NEED OF HELP (tightenthedragfoundation.org)
Improving the quality of life  through sports, funding, motivation and events. 813-743-2827

Walking With Anthony
Fundraising and scholarships to assist with the financial strains that come with a new and ongoing injury. (213) 986-6486

United Spinal Association
United Spinal is accepting applications for COVID-19 Relief grants of $500 for individuals with spinal cord injury/disease (SCI/D) who are experiencing financial difficulty due to circumstances related to COVID-19  |  718-803-3782 Apply at https://unitedspinal.org/covid-support/ and contact askus@unitedspinal.org with any questions.

 

The Four Levels of Injury

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Tetraplegia or Quadriplegia:
These terms generally describe the condition of a person with a spinal cord injury in the cervical region. This individual can experience a loss of feeling and/or movement in their head, neck, shoulder, arms and/or chest, stomach, hips, legs, and feet.

Paraplegia:
A general term describing the condition of a person who has lost feeling and/or is not able to move the lower parts of his/her body. The body parts that may be affected are the chest, stomach, hips, legs, and feet. Any thoracic level injury will cause paraplegia.

Incomplete Spinal Cord Injury:
When an injury is incomplete, the spinal cord’s ability to carry messages to or from the brain is not completely lost. Often some sensation and movement remains below the level of injury.

Complete Spinal Cord Injury:
In a complete spinal cord injury there is loss of sensation and motor function below the level of injury. Complete injuries are the most devastating and present with greater functional loss than an incomplete injury at a similar cord level.

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For More Information see the Shirley Ryan Abilitylab Spinal Cord Innovation Center

This content is for informational purposes only and may not be comprehensive. Information contained does not imply an endorsement from Shirley Ryan AbilityLab, and does not replace the advice of a qualified healthcare professional.  See here  for further details.
© Shirley Ryan AbilityLab (formerly Rehabilitation Institute of Chicago)
Henry B. Betts LIFE Center – (312) 238-5433

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