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Spina Bifida is a congenital disability (a disability that is present at birth) that affects the spine.
Centers for Disease Control and Prevention
This website from the CDC features information on how spina bifida affects infants, toddlers and preschoolers, school-age children, adolescents, and young adults.
https://www.cdc.gov/NCBDDD/spinabifida/living.html
1600 Clifton Road
Atlanta, GA 30329-4027
Phone: 800.CDC.INFO (800.232.4636)
TTY: 888.232.6348
Illinois Spina Bifida Association
The Illinois Spina Bifida Association works to improve the quality of life of children, adults, and families living with spina bifida.
https://www.i-sba.org/
2211 N. Oak Park Avenue
Chicago, Il 60707
Phone: 773.444.0305
NINDS- NIH Neurological Institute
Provides a definition of Spina Bifida, treatment, prognosis, clinical trials listing, patient organizations related to spina bifida and related publications for consumers to connect to.
https://www.ninds.nih.gov/Disorders/All-Disorders/Spina-Bifida-Information-Page
P.O. Box 5801
Bethesda, MD 20824
Phone: 800.352.9424
SHINE – Spina Bifida, Hydrocephalus, Information, Networking, Equality
Formerly the Association for Spina Bifida and Hydrocephalus) provides services in the United Kingdom. The website has information on the conditions, treatment, and publications specific to Spina Bifida.
https://www.shinecharity.org.uk/
42 Park Road
Peterborough
PEI 2 UQ
Spina Bifida Association
http://spinabifidaassociation.org/
The Spina Bifida Association promotes the prevention of Spina Bifida and to address the needs of all those affected.
1600 Wilson Blvd, Suite 800
Arlington, VA 22209
Phone: 800.621.3141
This content is for informational purposes only and may not be comprehensive. Information contained does not imply an endorsement from Shirley Ryan AbilityLab, and does not replace the advice of a qualified healthcare professional. See here for further details.
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