Body
Spina Bifida is a birth defect that happens when the spine doesn’t form properly. It can cause problems with movement, feeling, or other body functions depending on how severe it is.
Centers for Disease Control and Prevention - About Spina Bifida
This website from the CDC features information on how spina bifida affects infants, toddlers and preschoolers, school-age children, adolescents, and young adults.
Phone: 800.CDC.INFO (800.232.4636)
TTY: 888.232.6348
Illinois Spina Bifida Association
The Illinois Spina Bifida Association works to improve the quality of life of children, adults, and families living with spina bifida.
Phone: 773.444.0305
NINDS- NIH Neurological Institute
Provides a definition of Spina Bifida, treatment, prognosis, clinical trials listing, patient organizations related to spina bifida and related publications for consumers to connect to.
Phone: 800.352.9424
SHINE – Spina Bifida, Hydrocephalus, Information, Networking, Equality
Formerly the Association for Spina Bifida and Hydrocephalus) provides services in the United Kingdom. The website has information on the conditions, treatment, and publications specific to Spina Bifida.
No phone number listed
Spina Bifida Association
The Spina Bifida Association is a national organization that helps people affected by Spina Bifida. It provides support, education, and resources to improve lives and raise awareness.
Phone: 800.621.3141
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