Respite Resources

Media Type

Online Resource

Reviewed Date

Jun 17, 2025

This listing provides short term relief, otherwise known as 'respite services', for parents and caregivers when they are unable to care for their family member.

Home and Community-based Service Waiver Programs
The Medicaid Home and Community-Based Services (HCBS) waiver program, authorized under §1915(c) of the Social Security Act, allows states to offer services that help Medicaid beneficiaries live in the community rather than in institutions. States have flexibility to design cost-effective programs tailored to their target populations, using various service delivery models, including participant-directed care. These waiver services enhance those provided by the Medicaid State plan and other public or community supports. The Centers for Medicare & Medicaid Services (CMS) acknowledges that program design will vary based on state-specific needs, goals, and resources.
https://www.illinois.gov/hfs/MedicalClients/HCBS/Pages/default.aspx

Arch-National Respite Network & Resource Center
https://archrespite.org/respitelocator
Arch-National Respite Network and Resource Center assists and promotes the development of quality respite and crisis care programs, helping families locate respite and crisis care services, and serve as a strong voice for respite in all forums.
800 Eastowne Dr., Suite 105
Chapel Hill, North Carolina 27514
1-919-490-5577

Illinois Family Caregivers Support Program
https://www.illinois.gov/aging/CommunityServices/caregiver/Pages/caregiver_links.aspx

Department of Health and Human Services: Home Services Program
http://www.dhs.state.il.us/page.aspx?item=29738
100 South Grand Avenue
Springfield, Illinois 62762

401 South Clinton Street
Chicago, Illinois 60607
Hotline phone number: 1-800-843-6154

AARP-Home and Family Caregiving
https://www.aarp.org/caregiving/?migration=rdrct
601 E. Street, NW
Washington DC, 20049
1-888-OUR-AARP
1-888-687-2277

Illinois Respite Coalition
https://www.illinoisrespitecoalition.org/home.html
From respite and referral services, to statewide training opportunities, the IRC is here to help caregivers and their loved ones across the state and lifespan. Founded in 1998 as a grassroots organization, the IRC has been and continues to strive to meet caregivers' expressed needs through services, referral and advocacy.
Toll-Free Statewide Respite Phone:
866-ILL-RESP | 866-455-7377
ext. 101 for English
ext. 103 for Spanish-speakers

This content is for informational purposes only and may not be comprehensive. Information contained does not imply an endorsement from Shirley Ryan AbilityLab, and does not replace the advice of a qualified healthcare professional. See here for further details.