Body
When a person has a loss of body limb(s), there is a grief process as memory of the past life ability catches up with the present reality. A person with limb loss will adapt in new ways to their environment, and that takes mental and physical flexibility during this adjustment phase.
Shirley Ryan AbilityLab Limb Loss & Impairment
Amputation or limb impairment can affect ability, but does not have to affect the quality of your life.
https://www.sralab.org/conditions/limb-loss-impairment
ACPOC - Association of Children's Prosthetic-Orthotic Clinics
The Association of Children’s Prosthetic-Orthotic Clinics (ACPOC) is a global leader in multidisciplinary care for children, teens, and young adults with musculoskeletal differences. Their website offers resources for families and professionals, details on annual meetings, membership options, and opportunities to connect with clinics and industry partners.
Phone: 331.248.7799
AMP*D
A website by amputees, for amputees offering educational resources, podcast, travel, insurance claims, and advocacy. They also offer a product encyclopedia by limb, organized by Medicare’s system of coverage and reimbursement codes.
No phone number listed
Amputee Coalition
Please click on link below to find a wealth of resources, activities, camps, and information for persons and their loved ones/caregivers with limb loss across the lifespan.
Phone: 888.267.5669, Ext. 1
Amputee Coalition Support
The Amputee Coalition’s “Find a Support Group” page helps individuals with limb loss or limb difference—and their families—connect with others through virtual and in-person support groups. It includes meeting schedules, caregiver and youth-specific groups, and tools to find or register local support communities.
Phone: 888.267.5669
Amputee Coalition Fact Sheet: When a Parent Loses a Limb: Helping Children Cope
Having a parent experience limb loss can be a difficult event for children to understand for several reasons. The Amputee Coalition has developed a fact sheet with some tips and advice for helping the entire family unit through the time of transition that occurs when a parent returns home after a limb loss.
https://www.amputee-coalition.org/resources/when-a-parent-loses-a-limb-helping-children-cope/
The Amputee Store
Direct supplies for dressings and stockings to make your prosthetic more comfortable.
No phone number listed
Arm Dynamics – Upper Limb Library
Personal stories and life adjustment tips for life adapting to upper limb loss or childhood congenital limb differences.
Phone: 888.507.4138
Limb Loss Emotional Support Resources - Hanger Clinic
Hangar Clinic offers AMPOWER®, a peer-to-peer support program and online community for people with limb loss or limb difference. The mission of AMPOWER is to empower and strengthen those affected by amputation or limb differences through peer mentorship, education, and community. It consists of a nationwide network of trained peer mentors who have successfully recovered and rehabilitated following amputation and want to share their personal experiences with you. AMPOWER peer mentors can connect with you and your loved ones in person, over the phone, or online.
Phone: 877.442.6437
Limbs 4 Life
Located in Australia, Limbs 4 Life empowers amputees with knowledge and support to make a real difference, because no-one should have to go through limb loss alone.
Phone: 1300.782.231
Further Reading
Body
Magazines
AMPLITUDE
inMotion
New Mobility
O&P EDGE
Books
Above Knee Amputation & Below Knee Amputation by Todd Kuiken, PhD.
Life After Limb Loss by Julie Gross
Yoga for Amputees: The essential guide to finding wholeness after limb loss for yoga students and their teachers by Marsha Therese Danzig
You're Not Alone by John Sabbolich
Books for Children
Awesomely Emma: A Charlie and Emma Story by Amy Webb
The Making of My Special Hand by Jamee Riggio Heelan, OTR/L
The Peg Leg Princess by Rachel Wicker
The Wonky Donkey by Craig Smith
