Listing: Dementia, Alzheimer's and Aging Resources

Body

Dementia and Alzheimer’s disease aren’t the same. Dementia is an overall term used to describe symptoms that impact memory, performance of daily activities, and communication abilities. There are many types of dementia, but Alzheimer’s disease is the most common type. Alzheimer’s disease gets worse with time and affects memory, language, and thought.

Alzheimer's Resources

AADMD - The NTG - National Task Group is a coalition of individuals and organizations working toward ensuring that the needs and interests of adults with intellectual and developmental disabilities who are affected by Alzheimer’s disease and related dementia – as well as their families and friends – are taken into account as part of the National Plan to Address Alzheimer’s Disease. Members are families, association and organization representatives, practitioners, academics, and others who contribute time and effort to its activities.
https://aadmd.org/ntg

Alzheimer’s Foundation of America
The Alzheimer's Foundation of America unites more than 2,600 member organizations nationwide in the goal of providing optimal care and services to individuals living with dementia and to their families and caregivers.
https://alzfdn.org/
Toll free: 866.232.8484

Alzheimer’s Society
Alzheimer’s Society is the only UK charity that campaigns for change, funds research to find a cure and supports people living with dementia today. Located in London.
https://www.alzheimers.org.uk/

Alzheimers Association - Illinois Chapter  is the leading voluntary health organization in Alzheimer’s care, support and research.
800.272.3900
225 N. Michigan Ave. Floor 17 Chicago, IL 60601
https://www.alz.org/illinois

• Encouraging Comfort Care A Guide for Families with Dementia
  https://www.alzheimers-illinois.org/pti/downloads/Encouraging%20Comfort%20Care_DOUBLE.pdf
   
• Stages of Alzheimer’s  
  https://www.alz.org/alzheimers-dementia/stages

The Alzheimers Store
Selling products that help ease the comfort of the person with Alzheimer’s and their caregivers. Offering products that help those caring for individuals with dementia and other brain related conditions that include Huntington's, Parkinson's, and the spectrum of Minor Cognitive Impairments. Products such as GPS watches, door alarms, bed alarms, simple music players, weighted blankets, pet companion look-alikes.
Call in your order toll-free at 1-800-752-3238
https://www.alzstore.com/Default.asp

Aging in place
Tips on staying in place, in your home, and ageing gracefully with curiosity, duration, and care.
https://www.nia.nih.gov/health/aging-place-growing-older-home

ElderGURU – Aging and Living Gracefully
How to Adjust Your Home to Suit Your Needs.
https://www.elderguru.com/aging-and-living-gracefully-how-to-adjust-your-home-to-suit-your-needs/

HHS.gov – U.S. Dept of Health and Human Services – Aging
https://www.hhs.gov/aging/healthy-aging/index.html

Illinois Department on Aging IDoA
The Illinois Department on Aging helps older adults live independently in their own homes and communities. They have additional resources for housing, senior help lines, and Alzheimers.
https://www2.illinois.gov/aging/Pages/default.aspx
Illinois Department on Aging
Michael A. Bilandic Building
160 North LaSalle St., 7th Floor
Chicago, IL 60601-3117   1-866-800-1409

National Council on Aging
251 18th Street South | Suite 500 | Arlington | VA | 22202 | 571-527-3900
https://www.ncoa.org/

NIH-National Institute on Aging: Alzheimer's disease and Related Dementias
Very comprehensive site on the basics, causes, symptoms, treatments, caregiving and related dementias.
https://www.nia.nih.gov/health/alzheimers
National Institute on Aging
Building 31, Room 5C27
31 Center Drive, MSC 2292
Bethesda, MD 20892   Phone: 1-800-222-2225

Northeastern IL Age Guide
through our advocacy and coordination of life-changing resources such as meals, transportation caregiver and family support. These meaningful services optimize the quality of life and offer peace of mind by providing independence to aging adults.
https://ageguide.org/
 (800) 528-2000

The Gerontological Society of America
This broad professional organization aims to improve and disseminate the latest aging research to doctors, scientists, and policymakers.
https://www.geron.org/

American Society of Aging
With over 5,000 members nationwide, this organization links all sorts of professionals dedicated to elderly care, through conferences professional education, awards, and journals.
http://www.asaging.org/

The Human Ageing Genomic Resources (HAGR)
The Human Ageing Genomic Resources (HAGR) is a collection of databases and tools designed to help researchers study the genetics of human ageing using modern approaches such as functional genomics, network analyses, systems biology and evolutionary analyses.
https://genomics.senescence.info/

Support Groups

Alzheimer's Association Support Groups: find a support group for caregivers.
https://www.alz.org/events/event_search?etid=2&cid=0

FTD/PPA Support Group - Northwestern Campus
https://www.brain.northwestern.edu/care-and-support/support-groups.html 
Support Group for Caregivers of People with Frontotemporal Degeneration (FTD) and Primary Progressive Aphasia (PPA)
This group meets at the Northwestern Campus in Chicago, IL on the third Monday of each month. A new member screening is required to participate. Details of specific meeting location are made available after a new member screening is complete. Please contact Darby Morhardt, PhD, LCSW, at 312-908-9432 to set up a screening meeting

Family Caregiver Alliance – National Center on Caregiving:
https://www.caregiver.org/contact
800.445.8106.
For 40 years Family Caregiver Alliance (FCA) has supported and sustained the important work of families and friends nationwide who care for adult loved ones with chronic, disabling health conditions

Research Organizations:

Northwestern Medicine – Simon Laboratory -Healthy Aging:
https://labs.feinberg.northwestern.edu/simon/research/healthy-aging.html

The Dartmouth Institute for Aging Research
https://www.dartmouth-hitchcock.org/aging_resource_center.html
This Ivy League research institute focuses on improving clinical practice and health policy for older Americans.

Institute for Aging Research
https://www.marcusinstituteforaging.org/
Affiliated with Harvard University, this Boston-based facility is the largest gerontological research center in the United States, developing new treatments for old-age brain and bone health.

Buck Institute for Research on Aging
https://www.buckinstitute.org/
The oldest independent research facility in the U.S. dedicated exclusively to aging, this organization focuses on understanding and treating common old-age afflictions like cancer, stroke, Alzheimer’s, and Parkinson’s Disease.

American Federation for Aging Research
https://www.afar.org/
Since its start in 1981, this independent foundation has provided well over $100 million to biomedical researchers working to understand the fundamentals of the aging process.

Fisher Center for Alzheimer’s Research Foundation
https://www.alzinfo.org/
Alzheimer’s resource center with facts and resources

This content is for informational purposes only and may not be comprehensive. Information contained does not imply an endorsement from Shirley Ryan AbilityLab, and does not replace the advice of a qualified healthcare professional.  See https://www.sralab.org/website-disclaimer  for further details.

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