Amyotrophic Lateral Sclerosis (ALS) Resources

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Amyotrophic Lateral Sclerosis (ALS) is a nervous system disease that weakens muscles and impacts physical function. Pronounced (a-my-o-TROE-fik LAT-ur-ul skluh-ROE-sis), it is also known as Lou Gehrig's disease, this disease causes the nerve cells to break down, which reduces functionality in the muscles they supply. The cause is unknown. 
 
ALS Association
The ALS Association helps people learn about ALS and offers support for patients, families, and caregivers. It also funds research to find treatments and a cure.
Phone: 800.782.4747

Les Turner ALS Foundation
The Les Turner ALS Foundation provides care and support to people living with ALS and helps fund research to better understand and treat the disease.
Phone: 847.679.3311

Muscular Dystrophy Association
The Muscular Dystrophy Association gives information about ALS and helps families by supporting research and care programs.
Phone: 800.572.1717 

National Institutes of Health (NIH) / National Institute of Neurological Disorders and Stroke (NINDS)
NINDS is part of the NIH and shares facts about ALS, including symptoms, causes, and current research efforts.
Phone: 800.352.9424
 

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This collection of ALS resources offers trusted information and support for individuals living with ALS, their families, and caregivers. It includes educational tools, research opportunities, and community-based programs designed to help people better understand ALS and manage its challenges. Several resources also provide materials in Spanish, making ALS information more accessible to diverse audiences.

ALS Resource List
Everything ALS connects patients, caregivers, and researchers to speed up ALS discoveries and improve care. It offers webinars, research opportunities, and community support.
https://www.youralsguide.com/resource-list.html

Everything ALS
https://www.everythingals.org/

KidsHealth - Lou Gehrig's Disease
https://kidshealth.org/en/kids/als.html
Kidshealth.org has a has Spanish language ALS resource sheet.
https://kidshealth.org/es/kids/als.html 

MedlinePlus 
MedlinePlus provides trusted health information about ALS, including symptoms, treatments, and links to research and support.
https://medlineplus.gov/amyotrophiclateralsclerosis.html

Spanish ALS Resources:
The ALS Association has a Living With ALS Resource Guides that are available in Spanish.
https://www.als.org/navigating-als/resources/guias-de-recursos-vivir-con-ela

This content is for informational purposes only and may not be comprehensive. Information contained does not imply an endorsement from Shirley Ryan AbilityLab, and does not replace the advice of a qualified healthcare professional.  See here  for further details.© Shirley Ryan AbilityLab (formerly Rehabilitation Institute of Chicago)
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