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Parkinson’s Support Education Series

All you ever wanted to know about neuropsychiatric and non-motor issues but were afraid to ask

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Cognitive, behavior and emotional challenges as well as non-motor symptoms can occur in Parkinson’s disease (PD) but are not always discussed at length.

Jennifer Goldman, MD, MS and a team of PD experts will lead an exciting and interactive educational and support group program covering an array of topics relevant to neuropsychiatric and non-motor issues in PD. Sessions will feature presentations from our Parkinson’s disease care team and guest experts in the field of Movement Disorders.

This ten part series will offer monthly:
 

Virtual "live" online webinar sessions on the Saturday dates listed (NEW starting April 4th, 2020)

Options to view the virtual "live" online webinar sessions after the "live" event

Opportunities to view previously recorded sessions on-demand

Interactive question and answer sessions for people with PD and care partners

Opportunities to connect with others in the PD community

 

Details:

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The Parkinson Foundation has provided a generous community grant for this educational series and we offer this invaluable program at no cost to attendees.

Sessions will last approximately 2 ½ to 3 hours. You can attend sessions "live" online via webinar or view the session videos on-demand, or a combination of both, depending on your schedule/preference. You can reside anywhere and participate.

Sessions that have already occurred are available via online video for new signups upon registration. All future sessions will take place on the first Saturday of each month from 10:00 AM – 1:00 PM Central Time, with the exception of July 2020, which will take place on July 11.

Please see below for a detailed month-by-month schedule

 

How will online participation be structured? Do I need special software?

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Participants may choose to view the sessions "live" online via webinar on the Saturday dates listed or on-demand. Video recordings of each session’s presentations will be available online, usually within one week after the live session occurs. Registered participants will be notified via email when each session’s online videos and online materials are available. There will be an online form for question submission. Responses to questions by the session presenters will be distributed to all participants.

You will not need specialized software to view the online videos "live" via webinar nor on-demand.

Research Study:

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As part of this activity, you will be asked to participate in a research survey containing questions about your experience attending the sessions and about quality of life and caregiver strain. Participation in the research portion is strictly voluntary, and your care will not be affected by your decision to participate or not. Your responses will be anonymous. Information gathered from the research questions will help inform future educational series and ways to address the needs and interests of the PD community.

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Date

Topic

Presenters

January 4, 2020

Depression & Anxiety

Jennifer Goldman, MD, MS – Shirley Ryan AbilityLab

Roseanne Dobkin, PhD – Rutgers University

Shannon Kimbrel, PT, DPT, NCS – Shirley Ryan AbilityLab

February 1, 2020

Cognition & Psychosis

Jennifer Goldman, MD, MS – Shirley Ryan AbilityLab

Julia Wood, MOT, OTR/L – University of Pennsylvania

Cathy O’Connell, RN, BSN – Northwestern

 

March 7, 2020

Apathy & Fatigue

Priya Mhatre, MD – Shirley Ryan AbilityLab

Heidi Richter – Shirley Ryan AbilityLab

Linda Rice, PhD – Shirley Ryan AbilityLab

April 4, 2020

Vision

Janet Rucker, MD – NYU Langone Medical Center

Kelsey Watters, OTR/L – Shirley Ryan AbilityLab

Shari Marchbanks, PT, DPT, NCS – Shirley Ryan AbilityLab

May 2, 2020

Non-Motor Fluctuations

Danielle Larson, MD – Northwestern

Susanna Miranda, DNP, APRN, AGNP-C – Shirley Ryan AbilityLab

Elaine Book, MSW, RSW – University of British Columbia

June 6, 2020

Bowel, Bladder & Blood Pressure

Neil Shetty, MD – Northwestern

Jessica Connelly, PT, DPT – Shirley Ryan AbilityLab

Jenna Iseringhausen, BSN, RN – NYU Langone

July 11, 2020*

*note date

Intimacy & Relationships

Nabila Dahodwala, MD, MS – University of Pennsylvania

Gila Bronner, MPH, MSW, CST – Sheba Medical Center

Elaine Book, MSW, RSW – University of British Columbia

August 1, 2020

Sleep

Santiago Toledo, MD – Shirley Ryan AbilityLab

Miriam Rafferty, PT, DTP, PhD – Shirley Ryan AbilityLab

Erica Sieg, PhD – Northwestern

 

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How can I contact the organizer with any questions?

Please contact Doug Merkitch, Clinical Research Coordinator, dmerkitch@sralab.org, 312-238-5911

How can I register?

Please call Doug or fill out the online form

 
Photo by Nik Shuliahin on Unsplash

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