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Clinical Trial

PAIRing up to address neuropsychiatric concerns in Parkinson's Disease

IRB Protocol Number STU00213530

Contact

Douglas Merkitch dmerkitch@sralab.org

Objective

People with Parkinson’s disease (PD) and care partners are invited to participate in an online survey to learn about the needs and priorities for clinical care, education, support, and research as related to neuropsychiatric symptoms in PD.

Neuropsychiatric symptoms may include a broad spectrum of symptoms and may refer to changes in cognition (e.g., decline in attention, thinking, memory, planning), mood (e.g., depression, anxiety, stress, or apathy), behavior (e.g., hallucinations/psychosis, impulse control behaviors), sleep and fatigue. It is important to note that not every person with PD will experience these symptoms and that if they occur, they can vary in frequency and severity.

Your feedback will help the healthcare community and other people with PD or their care partners understand people’s experiences or concerns about these topics as well as what types of clinical care, education, support, and research is needed in the field.

Participants in this study will fill out anonymous online surveys.

The surveys were developed with input from an advisory group, which included people with PD, care partners of people with PD, and healthcare professionals.

 

If you are interested in participating or want to learn more, please follow this link:

https://bit.ly/PAIR-survey-PD-Goldman

 

Who Can Participate

You may be eligible to participate if you:

- Are a person with PD

- Are a care partner of someone in PD (e.g., spouse/significant other, family, friend, paid caregiver)

- Currently be located in the United States (US) or US Territories

- Have access to a computer, smart phone, iPad or similar device with internet connectivity

Compensation

no compensation provided.

Age Range

18 +

Apply for this Trial

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